How Jack & Jill Begun
Welcome to our world
It is a challenging world that many people never even know exists. Many people are blessed with healthy babies. For them, parenting is about feeding, changing, teething, and catching the odd snatch of sleep!
But for the parents of babies who are born with life threatening and severely debilitating conditions, parenting involves desperation and pain, punctuated by drugs, physio, seizures, and hospital operations. A long sequence of exhaustion, and often terror.
The Jack & Jill Foundation provides nursing care and support for children with severe neurological development issues, as well as offering some respite to the parents and families
This could be through home visits from nurses, with practical tips on how to access the services a child will need. Listening to what parents want for their child and making representations on their behalf. Bereavement support and an online forum for parents. Lobbying the Government and the HSE.
Jack & Jill also provides direct funding to families, enabling them to buy home respite care to give them a break. The Foundation cannot cure the children. But it can help to alleviate some of the difficulties that exist.
At all times, we are mindful of the isolation and loneliness that families experience and we pay particular attention to the needs and emotions of the healthy brothers and sisters who can so easily be overlooked.