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Useful Information

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Home Family Family Resource Centre Useful Information

National Support Services

HSE

The HSE website outlines disability services for children and young people. It includes information on who to contact in your areas, what service the Children’s Disability Network Teams provide and explains the ongoing development of the national Progressing Disabilities Programme.

https://www.hse.ie/progressingdisabilityservices

Irish Wheelchair Association (IWA)

IWA works with, and on behalf of, people with physical disabilities to drive positive change in Ireland through the influencing of public policy, the provision of quality services and enabling accessibility to all aspects of society. Some of the services include Disabled Persons Parking Permit, housing information, assisted living programme and Holiday information

www.iwa.ie

The National Disability Authority

The NDA, as the independent statutory body provides information and advice to the Government on policy and practice relevant to the lives of persons with disabilities. They have a role to assist the Minister for Justice and Equality in the co-ordination of disability policy.

www.nda.ie

The Disability Federation of Ireland (DFI)

The DFI represents the interests and the expectations of people with disabilities to be fully included in Irish society. It comprises of voluntary organisations that represent and support people with disabilities and disabling conditions.

www.disability-federation.ie

Children in Hospital Ireland (CHI)

The CHI is a national organisation committed to promoting and ensuring the welfare of all children in hospital and their families. For over 45 years, the organisation has been directly working with sick children to bring them fun and support. CHI uses its expertise to deliver unique daily and weekly play sessions that support children, parents and staff in 13 hospital wards and playrooms nationwide. They also offer information and support to parents and professionals.

www.childreninhospital.ie

Parental Advice and Support

INFORMING FAMILIES

The Informing Families website www.informingfamilies.ie  provides information for parents and professionals at the time of a child’s diagnosis with a physical, sensory or intellectual disability, or when there are concerns about a possible diagnosis.  The Informing Families website was developed by the National Federation of Voluntary Bodies in consultation with families and professionals. It incorporates information for parents, professionals and developed best practice guidelines for informing families of their child’s disability, and supporting families receiving this news.

FAMILY CARERS IRELAND

Family Carers Ireland is a registered charity founded in 2016.

Family Carers Ireland provides a variety of supports and services to family carers. These include training for carers, home care services, information on carers, rights and entitlements, free legal advice and both one-to-one counselling and personal advocacy services. Further information can be found on www.familycarers.ie

DEPARTMENT OF CLINICAL GENETICS

The Department of Clinical Genetics (DCG) provides a public genetics service to referring clinicians for patients and families in the Republic of Ireland affected by, or at risk of, a genetic disorder.  It is estimated that European populations have a 6%-8% lifetime prevalence of having a rare disease, the majority of which are genetic.  DCG provides public diagnostic services for a broad range of hereditary disorders and, because of the familial nature of genetic disorders, serves both adults and children. www.genetics.ie

ORPHANET

Some conditions children live with are extremely rare. A useful link is www.orphanet.ie  Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases and ensure equal access to knowledge.

UNIQUE

www.unique.ie is a registered charity which aim to provide specialist information relating to many hundreds of different rare chromosome disorders and autosomal single gene disorders, to inform parents, carers and professionals.

Unique aims to facilitate a network of families across the world living with rare chromosome disorders or autosomal dominant single gene disorders, bringing them together both in person and virtually for invaluable mutual support. Increasing awareness and understanding of what its like to live with these disorders.

EPILEPSY IRELAND

Epilepsy Ireland was established in 1966 with the goal of improving the quality of life of people with epilepsy in Ireland.

Epilepsy Ireland’s vision is to achieve a society where no person’s life is limited by epilepsy.

Epilepsy Ireland provides support and information services, communicating, raising awareness and advocating about epilepsy. Providing education and training. Undertaking and supporting epilepsy research.

Epilepsy Ireland headquarters are based in Dublin with a number of regional offices in Cork, Dundalk, Galway, Kerry, Kilkenny, Letterkenny, Limerick, Sligo and Tullamore

For more information visit www.epilepsyireland.ie

CHILDVISION

ChildVision is the only place in Ireland totally dedicated to the education and therapy needs of blind and multi-disabled children.

ChildVision looks after children from all over Ireland ranging in age from birth to 23 years of age. Meeting the individual needs of each child in ChildVision is the core of their work. All staff work together to realise the unique potential with each boy and girl no matter how severe the disability. The team includes speech and language therapists, occupational therapists, teachers, nurses, braille specialists, social care workers, pet and equine therapists. All services are free of charge. For more information visit www.childvision.ie

HANEN CENTRE

The Hanen Centre focuses on early language intervention for children with language delays.

The Hanen Centre is committed to supporting the most important people in a young child’s life to promote the best possible language, social and early literacy skills. Parents, professionals and academia. www.hanen.org

LAMH

Lamh is a manual sign system used by children and adults with intellectual disability and communication needs in Ireland. Lamh signs are used to support communication. Lamh supports communication between parents, children, siblings, friends and professionals. It can be a setting stone to communication with the world. If you are new to lamh find out more about using and learning lamh at www.lamh.org

SPECIAL NEEDS PARENTS ASSOCIATION

Special Needs Parents Association is a national parent-run organisation which provides support and information for families who have children with disabilities and special needs. They can provide assistance for parents with guidance, direction, advice and help. More information visit www.specialneedsparents.ie/

ROLLERCOSTER

www.rollercoaster.ie is the leading website in Ireland for mums and mums-to-be and has been advising on parenting since 2000. It supports members with quality content while also publishing user generated discussion forums on the highs and lows of being a parent.

SOCIAL MEDIA

Online support groups can offer people emotional support, practical support and educational resources through online closed support groups, peer support and parent to parent forums.

An increasing number of online support groups have embraced the features of social networking. However, little is known about how parents use and benefit from these features.

Equipment Recommendations by Jack & Jill Families

Regular buggies – which offer good support and suit the taller child

  • Out and About buggy
  • Mini City GT buggy
  • Baby Jogger Elite

Special Needs Strollers – not customised

  • Tomato Buggy
  • Maclaren Major Elite Buggy

Sun and Rain Canopy Combination for customised buggy or wheelchair

https://www.specialisedorthoticservices.co.uk/product/sun-rain-canopies/

Gary B Wheelchair Accessories

https://garybwheelchairaccessories.ie/

Please contact Ursula Boland Phone No. 087 6266279. Discount code available for Jack & Jill families.

Splashy

Bath seat; portable and can be used on the ground in the garden or at the beach www.fireflyfriends.com

GoTo

Portable supportive seat – www.fireflyfriends.com

Ppod

Supportive beanbag seat

  • www.specialisedorthoticservices.co.uk
  • www.beechfieldhealthcare.ie

Buggy Pod

A side car that attaches to most buggies transforming them into a two-seater when needed.www.buggypod.com

Assistireland.ie

This online resource provides information on daily living aids, mobility aids and assistive technology, and provides lists of suppliers of such equipment in Ireland. Assist Ireland is provided by the Citizens Information Board.

www.assistireland.ie

Social media platform

Equipment (Facebook Group) Special Needs Equipment Buy, Sell and Swap – Ireland.

VAT Refund Forms for Equipment Purchases

https://www.revenue.ie/en/online-services/services/claims-and-refunds/apply-for-refund-of-vat-on-aids-and-appliances-for-persons-with-disabilities.aspx

VAT refund form for equipment purchased from UK.

Car Seat List

  • Britax Maxi Cosi. 0kgs-19kgs
  • Cybex Sirona Combination seat – has good tilt on it. 0kgs to 18kgs (Mothercare stock same)
  • Kiddy Evo Lunafix car seat, seat can lie flat in car – 0kgs to 13kgs
  • Britax Dualfix Carseat – 0kgs – 18.5kgs
  • BeSafe Izi plus car seat, suitable rear facing for the weight bracket – 0kgs to 25kgs
  • Britax Traveller Plus – special needs car seat – 15kgs-36kgs

Toy Recommendations by Jack & Jill Families

Toys enjoyed by Jack and Jill Children

Interactive Mirror – Peek a boo mirror www.enablingdevices.com

Bubbles/No Spill Bubbles www.pustefix.de

Fibre Optic Kits www.starscape.co.uk

Laser Star Projector – Laser Cosmos www.findmeagift.co.uk

Swing – Smyths toys/Mothercare

Swing Swung – two swings where one swings both www.specialneedstoys.com/uk/search?query=swing+swung

Websites families Have Used to Source Toys

Thinking Toys was established with the intention of providing access, in Ireland, to a range of products that can bring specific benefit to children who have special needs or learning difficulties. They are based in Killaloe, Co. Clare.

www.sensationalkids.ie Ireland’s only Child Development & Learning Store Sensational. Kids Online Shop that is run as a Social Enterprise #NotForProfit. 100% of the proceeds go towards helping a subsidised early intervention service

www.cheapdisabilityaids.co.uk Sell sensory toys and educational supplies and deliver to Ireland.

www.specialneedstoys.com Sensory toy specialist

Clothing

Specialist Clothing | Dunnes Stores

www.dunnesstores.com/specialist-clothing/babywear/fcp-category/list

Special Needs Bodysuits – Marks & Spencer

https://www.marksandspencer.com › home › Baby

SpecialKids.Company: Special Needs Clothing & Accessories

https://specialkids.company/

Babyboo

www.babyboo.ie

Busy Buddy

www.busybuddys.ie

Travel Tips

If travelling abroad are there any services available for advice regarding flights?

Ryanair

Special assistance online guide available at www.ryanair.ie.

If assistance is required at the airport or on board a flight contact at least 48hrs in advance. Special assistance can be requested at time of booking or afterwards via “Manage my Booking”.

If your child is traveling with mobility aids or special medical equipment is required on board it is vital that you contact Ryanair directly via www.ryanair.ie through email, web chat or phone 0818 303 030

  • Mon – Fri: 06:00 – 19:00
  • Sat: 09:00 – 18:00
  • Sun: 10:00 – 18:00

Please note if seating assistance or postural support is required for your child only a number are permitted by Ryanair which include Amsafe Cares Harness, Crelling Harness, Meru Travelchair, Firefly Goto Seat and Burnett Body Support. These are not supplied by Ryanair and must be supplied by the customer.

Aer Lingus

Special assistance online guide available at www.aerlingus.ie all info located under Travel Information.

Complete a special assistance request form online no later than 48hrs prior to departure.

Please note if you change a booking online that already contains your special request this information does not automatically transfer to your new booking and should be completed again.

Contact Info:

Submit a Special Assistance Request online.

Phone: 1890 800250

  • Mon – Fri: 09:00 – 17:00
  • Sat, Sun & Bank Holidays: 10:00 – 16:00

It is recommended that you make contact with your flight operator as soon as possible to organise all necessary assistance and equipment required for safe traveling.

Details given above refer only to the most popular airline departures from Ireland.

If I need help with my child when at the airport who do I contact?

Dublin Airport

One Complete Solution (OCS): Provides assistance from your car to the plane if required. This service is free of charge. Contact 48hrs prior to flight. If requiring assistance from your car or bus contact 087 7602477 on arrival and allow 30 mins for assistance to arrive. The service can only be booked for Dublin Airport and not at your arriving destination.

Phone No: 01 7047783

  • Mon – Fri: 09:00 – 17:00

If assistance is required at your destination your airline can book assistance at both locations.

Cork Airport

Assistance can be pre booked via the main airport contact number or otherwise in the short term car park a help call button is located at the entrance once same has been activated assistance will be provided.

Phone No: 021 431 3131

  • Mon – Fri: 09:00 – 17:00

24hr assistance is available. If assistance is required on arrival at your destination your airline can assist with same.

Shannon Airport

People with reduced mobility (PRM) provide assistance as required at Shannon Airport this service can be booked prior to arrival and also on arrival. PRM help desk is located in the main building.

Phone No: 061 712 000

24 hr availability.

Please make direct contact with other airports for specific conditions regarding assistance.

Disabled Parking at Irish Airports?

Dublin Airport Parking

Phone No: 01 944 0440

If you have a Disabled Parking Cert you can park in the short term car park at a discounted rate using the code RCP 132DAA online at a daily rate of 9.50 euro.

Cork Airport Parking

Phone No: 021 431 3131

If you have a Disabled Parking Cert you can park in the short term car park and avail of the long term parking online prices. Retain your ticket received on entry to the car park and present it to Customer Service Desk in the main building.

Shannon Airport Parking

Phone No: 061 712 000

If you have a Disabled Parking Cert or reduced mobility you can book parking online select “Park for less” 6 euro daily. On arrival park in the short-term car park and either make contact with the car park office in the main building or on exiting the car park select the help button and provide reference number received through online booking.

Note: Ensure your disabled parking cert is displayed when parking at the airport. A photocopy of the front and back of the cert will suffice as you may require the permit when abroad.

Oxygen Requirements When Travelling?

If your child requires oxygen and you are planning to travel abroad.

  1. Obtain a prescription from your Consultant.
  2. Contact your oxygen provider who will assist you with organising oxygen abroad.
  3. Contact your airline at time of booking should oxygen be required during the flight. Not all airlines allow passengers to carry oxygen cylinders onto the plane but will provide oxygen for a fee. Some airlines will allow portable oxygen concentrators on board.
  4. If you are traveling within the EU, the cost is covered by the European Health Insurance Card. Each EU citizen is entitled to a European Health Insurance Card.
  5. If you are not in receipt of a Medical card a fee is involved, however this fee can be redeemed through the Drugs Payment Scheme.

Useful link: https://www.hse.ie/eng/health/hl/living/copd/travelling-with-oxygen.html

What if I need feeding equipment and feeds when travelling abroad?

Nutricia Advanced Medical Nutrition provide a courier service where feeds and feeding equipment will be collected from you and couriered to your holiday destination free of charge (up to a maximum of one month’s supply).

Freephone No: 1800 22 1800

If your feeding equipment is provided through a different company, please contact them directly to enquire re their service.

If mobility equipment is required while abroad?

www.mobilityequipmenthiredirect.com this is a UK based company and can assist when mobility equipment is required such as hoists throughout the EU, USA and some Asian countries.

www.accessiblespaintravel.com is a company that assists when planning to holiday in Spain only. Assisting with accommodation needs such as widened door space for accessibility with mobility aids etc.

Each company has previously been used and recommended by Jack and Jill families.

The Irish Pilgrimage Trust?

The Irish Pilgrimage Trust is a registered charity in Ireland for over 40 years and travels to Lourdes with infants and young people with special needs, from all over Ireland. The Trust has over 1,200 people travelling at Easter time and is divided into small groups of approx. 10 young people and 12 volunteer carers.

The cost for the child and one parent to travel is covered by the charity. Other family members wishing to travel, generally, must self-fund.

Telephone No: 091 796622
Email: [email protected]

Holidays within Ireland?

Accessible Ireland is an Irish based company assisting with accommodation, dinner reservations, entertainment, places to visit and getting around on public transport. Making Ireland accessible to everyone.

Email: in[email protected]

Any Questions?

Phone: +353 45 894 538 or Email: [email protected]

Our Commitment of Care

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Courage

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Care

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Commitment

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Communication

Contributions to AIB Bank, Naas:

IBAN: IE22 AIBK 9332 3615 5480 41
BIC/Swift Code: AIBKIE2D

RCN: 20036201
Registered Charity No: CHY12405

Good Governance Award Winner 2020

Information

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Contact Us

Phone:

(045) 894 538 or (045) 894 660

Email:

[email protected]

Address:

Johnstown Manor, Johnstown, Naas, Co Kildare, Ireland

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